Minimaler Datensatz Swiss Stroke Registry Stand: 18. Mrz. 2015

Im Swiss Stroke Registry werden obligatorische Variablen (minimaler Datensatz) und fakultative Zusatzvariablen erfasst. Ob eine Variable obligatorisch oder

fakultativ ist hängt auch vom Index-Ereignis (sog. „Qualifying Event“) ab.

Patienten, welche innerhalb der letzten 7 Tage vor Eintritt eines der folgenden 8 Qualifying Events hatten, werden im SSR erfasst:

(1) Ischemic stroke (2) Transient ischemic attack (3) Intracerebral hemorrhage (4) Retinal infarct (5) Amaurosis fugax (6) Acute ischemic myelopathy (7) Cerebral sinus vein thrombosis (8) Non-traumatic subarachnoid hemorrhage Im Folgenden werden die obligatorischen Variablen für diese 8 Qualifying Events aufgelistet. Die Variablenbezeichnungen, wie sie in der Eingabemaske des SSR

erscheinen, sind fett gedruckt. N.B. das SSR wird in Englischer Sprache geführt.

Leo Bonati

Für das Swiss Stroke Registry Steering Committee

18. März 2015

1. Ischemic stroke

Variable name

Section Variable description Variable description / format

General information

id_site Site ID

birth_date Date of birth (dd.mm.yy)

id_hospital_case Hospital case ID (case number in hospital)

id_event Event ID

Variable name

Section Variable description Variable description / format

event_type Type of event (Criteria for new SSR entry Each hospital or emergency room admission for cerebrovascular event <7 days before admission, or occurring in hospital. If several events, select the most severe.

(1) Ischemic stroke / (2) Transient ischemic attack / (3) Intracerebral hemorrhage/ (4) Retinal infarct / (5) Amaurosis fugax / (6) Acute ischemic myelopathy / (7) Cerebral sinus vein thrombosis / (8) Non-traumatic subarachnoid hemorrhage

zip Zip code of legal residence (4 digit number)

non_swiss No Swiss residency (tick box)

arrival_date Date and time of arrival at hospital (dd.mm.yy) (hh:mm)

age Age (yyy.yyy)

sex Sex (1) Male / (2) Female

Prehospital phase and admission

Symptom onset

onset_known Time of symptom onset known (0) no / (1) yes / (3) wake up

onset_time Time of symptom onset or last proof of good health

(dd.mm.yy) (hh:mm)

wakeup_time Time of awakening (dd.mm.yy) (hh:mm)

referral Referral (1) Emergency service (144) / (2) General Practitioner / (3) Self referral / (4) Other Stroke Unit or Stroke Center / (5) Other hospital / (6) In-hospital stroke

referring_unitcenter Patient referred from:

transport Type of transport (1) Ambulance / (2) Helicopter / (3) Other (taxi, self, relatives, friends...)

Clinical assessment

NIH_admission NIH Stroke Scale on admission (0-41) continuous (xx)

mca Vascular territory affected (select at least one, multiple are possible)

MCA (1) no / (2) right / (3) left / (4) bilateral

aca ACA (1) no / (2) right / (3) left / (4) bilateral

pca PCA (1) no / (2) right / (3) left / (4) bilateral

vertebrobasilar Vertebro-basilar (1) no / (2) right / (3) left / (4) bilateral

Brain imaging on admission

firstimage_type First brain imaging type (1) CT / (2) MRI / "If no internal brain imaging done:" (3) External CT / (4) External MRI

firstimage_result First brain imaging result (1) No acute lesion / (2) Ischemia / (3) Ischemia with hemorrhagic transformation / (4) Acute intracranial hemorrhage / (5) Other finding

Biometric data

Variable name

Section Variable description Variable description / format

bp_syst First systolic blood pressure in hospital (mmHg)

continuous (xxx)

bp_diast First diastolic blood pressure in hospital (mmHg)

continuous (xxx)

height Height (cm) continuous (xxx)

weight Weight (Kg) continuous (xxx)

bmi BMI continuous (xx.x)

glucose Serum glucose (mMol/L) (first value after arrival) continuous (xx.x)

Acute Treatment (multiple are possible)

treat_antiplatelet Antiplatelet drugs (0) no / (1) yes

treat_anticoagulant Anticoagulants (therapeutic dose) (0) no / (1) yes

treat_ivt Intravenous thrombolysis with rtPA (0) no / (1) yes / (2) started before admission

ivt_start Start time (dd.mm.yy) (hh:mm)

onset_ivt_time Onset to treatment time (hh:mm)

door_ivt_time Door to treatment time (hh:mm)

treat_iat Intra-arterial treatment (0) no / (1) yes

iat_start Time of groin puncture (dd.mm.yy) (hh:mm)

onset_iat_time Onset to groin puncture time (hh:mm)

door_iat_time Door to groin puncture time (hh:mm)

anaesthesia Anesthesia (1) None / (2) Conscious sedation / (3) General anaesthesia

iat_rtpa Intra-arterial rtPA used (0) no / (1) yes

iat_uk Intra-arterial Urokinase used (0) no / (1) yes

iat_mech Mechanical treatment (0) no / (1) yes

iat_end End of intra-arterial treatment (dd.mm.yy) (hh:mm)

treat_study Study treatment (treatment other than above administered in study protocol)

(0) no / (1) yes

treat_none No acute treatment (0) no / (1) yes

hospitalization Initial hospitalization

(1) Monitored stroke unit in-house / (2) Non-monitored stroke unit in-house / (3) Other intermediate or intensive care unit in-house / (4) General ward in-house / (5) Referral to other Stroke Unit or Stroke Center / (6) Referral to other hospital or care institution / (7) Outpatient management

other_unitcenter Patient referred to:

Variable name

Section Variable description Variable description / format

etiology_ischemia Etiology (modified TOAST criteria) (select only one option)

(1) Large artery atherosclerosis (>=50% stenosis) / (2) Cardiac embolism (excluding PFO or other rare cardiac causes) / (3) Small vessel disease / (4) Cervical artery dissection / (5) PFO (only cause and <3 vascular risk factors) / (6) Other determined etiology / (7) More than one possible etiology / (8) Unknown etiology despite complete evaluation / (9) Unknown etiology with incomplete evaluation / (10) Stroke or TIA mimic

Medical history

Past cerebrovascular events

stroke_pre Ischemic stroke or retinal infarction (0) no / (1) yes

tia_pre TIA or amaurosis fugax (0) no / (1) yes

ich_pre Intracranial hemorrhage (0) no / (1) yes

Cerebrovascular risk factors (known or newly diagnosed)

hypertension Hypertension (>140/90 mmHg repetitively) (0) no / (1) yes

diabetes Diabetes (without glucose intolerance) (0) no / (1) yes

hyperlipidemia Hyperlipidemia (treatment or LDL>2.6mmol/L) (0) no / (1) yes

smoking Actively smoking (or stopped <2 years ago) (0) no / (1) yes

atrialfib Atrial fibrillation/flutter (>1 documented episode)

(0) no / (1) yes

followimage_type Follow-up brain imaging

(1) None / (2) CT / (3) MRI / (4) CT and MRI

Hospital course / outcome

NIH_24h NIHSS 24h after admission continuous (xx)

ich_sympt_hospital Symptomatic intracranial hemorrhage (0) no / (1) yes

ich_sympt_hospital_date Date of intracranial hemorrhage (dd.mm.yy)

stroke_hospital Recurrent ischemic stroke in hospital (0) no / (1) yes

stroke_hospital_date Date of stroke (dd.mm.yy)

death_hospital Death in hospital (0) no / (1) yes 3-month follow-up form does not open if

cea_symptomatic Endarterectomy for symptomatic carotid stenosis

(0) no / (1) yes

Date of endarterectomy (dd.mm.yy)

cas_symptomatic Stenting for symptomatic carotid stenosis (0) no / (1) yes

Date of stenting (dd.mm.yy)

pfo_closure PFO closure (0) no / (1) yes

Date of PFO closure (dd.mm.yy)

decompression Decompressive craniectomy (0) no / (1) yes

Variable name

Section Variable description Variable description / format

discharge_destination Discharge destination (1) Home / (2) Rehabilitation hospital / (3) Other acute care hospital / (4) Nursing home, palliative care center, or other medical facility

discharge_date Date of hospital discharge (or death in hospital)

(dd.mm.yy) (hh:mm)

duration_hosptial Duration of hospital stay (dd:hh)

3-Month outcome

followup_date Date of follow-up (dd.mm.yy)

followup_mode Mode of follow-up (1) Clinical / (2) Telephone or other contact with patient / (3) Telephone or other contact with relative

mRS_90days mRS 3 months after stroke onset (0) 0 = No symptoms / (1) 1 = No significant disability despite symptoms / (2) 2 = Slight disability / (3) 3 = Moderate disability / (4) 4 = Moderately severe disability / (5) 5 = Severe disability / (6) 6 = Dead

Recurrent cerebrovascular events after discharge, ≤90 days of initial event (multiple events are possible)

stroke_followup Ischemic stroke including retinal stroke (0) no / (1) yes

stroke_followup_date Date of stroke (dd.mm.yy)

ich_followup Intracranial hemorrhage (0) no / (1) yes

ich_followup_date Date of intracranial hemorrhage

(dd.mm.yy)

death_followup Death (0) no / (1) yes

death_follwoup_date Date of death (dd.mm.yy)

2. Transient ischemic attack

Variable Name

Section Variable description Variable description / format

General information

id_site Site ID

birth_date Date of birth (dd.mm.yy)

id_hospital_case Hospital case ID (case number in hospital)

id_event Event ID

event_type Type of event (Criteria for new SSR entry Each hospital or emergency room admission for cerebrovascular event <7 days before admission, or occurring in hospital. If several events, select the most severe.

(1) Ischemic stroke / (2) Transient ischemic attack / (3) Intracerebral hemorrhage/ (4) Retinal infarct / (5) Amaurosis fugax / (6) Acute ischemic myelopathy / (7) Cerebral sinus vein thrombosis / (8) Non-traumatic subarachnoid hemorrhage

Variable Name

Section Variable description Variable description / format

zip Zip code of legal residence (4 digit number)

non_swiss No Swiss residency (tick box)

arrival_date Date and time of arrival at hospital (dd.mm.yy) (hh:mm)

age Age (yyy.yyy)

sex Sex (1) Male / (2) Female

Prehospital phase and admission

Symptom onset

onset_known Time of symptom onset known (0) no / (1) yes / (3) wake up

onset_time Time of symptom onset or last proof of good health

(dd.mm.yy) (hh:mm)

wakeup_time Time of awakening (dd.mm.yy) (hh:mm)

referral Referral (1) Emergency service (144) / (2) General Practitioner / (3) Self referral / (4) Other Stroke Unit or Stroke Center / (5) Other hospital / (6) In-hospital stroke

referring_unitcenter Patient referred from:

transport Type of transport (1) Ambulance / (2) Helicopter / (3) Other (taxi, self, relatives, friends...)

Clinical assessment

NIH_admission NIH Stroke Scale on admission (0-41) continuous (xx)

mca Vascular territory affected (select at least one, multiple are possible)

MCA (1) no / (2) right / (3) left / (4) bilateral

aca ACA (1) no / (2) right / (3) left / (4) bilateral

pca PCA (1) no / (2) right / (3) left / (4) bilateral

vertebrobasilar Vertebro-basilar (1) no / (2) right / (3) left / (4) bilateral

Brain imaging on admission

firstimage_type First brain imaging type (1) CT / (2) MRI / "If no internal brain imaging done:" (3) External CT / (4) External MRI

firstimage_result First brain imaging result (1) No acute lesion / (2) Ischemia / (3) Ischemia with hemorrhagic transformation / (4) Acute intracranial hemorrhage / (5) Other finding

Biometric data

bp_syst First systolic blood pressure in hospital (mmHg)

continuous (xxx)

bp_diast First diastolic blood pressure in hospital (mmHg)

continuous (xxx)

glucose Serum glucose (mMol/L) (first value after arrival) continuous (xx.x)

Variable Name

Section Variable description Variable description / format

Acute Treatment (multiple are possible)

treat_antiplatelet Antiplatelet drugs (0) no / (1) yes

treat_anticoagulant Anticoagulants (therapeutic dose) (0) no / (1) yes

treat_none No acute treatment (0) no / (1) yes

hospitalization Initial hospitalization

(1) Monitored stroke unit in-house / (2) Non-monitored stroke unit in-house / (3) Other intermediate or intensive care unit in-house / (4) General ward in-house / (5) Referral to other Stroke Unit or Stroke Center / (6) Referral to other hospital or care institution / (7) Outpatient management

other_unitcenter Patient referred to:

etiology_ischemia Etiology (modified TOAST criteria) (select only one option)

(1) Large artery atherosclerosis (>=50% stenosis) / (2) Cardiac embolism (excluding PFO or other rare cardiac causes) / (3) Small vessel disease / (4) Cervical artery dissection / (5) PFO (only cause and <3 vascular risk factors) / (6) Other determined etiology / (7) More than one possible etiology / (8) Unknown etiology despite complete evaluation / (9) Unknown etiology with incomplete evaluation / (10) Stroke or TIA mimic

Medical history

Past cerebrovascular events

stroke_pre Ischemic stroke or retinal infarction (0) no / (1) yes

tia_pre TIA or amaurosis fugax (0) no / (1) yes

ich_pre Intracranial hemorrhage (0) no / (1) yes

Cerebrovascular risk factors (known or newly diagnosed)

hypertension Hypertension (>140/90 mmHg repetitively) (0) no / (1) yes

diabetes Diabetes (without glucose intolerance) (0) no / (1) yes

hyperlipidemia Hyperlipidemia (treatment or LDL>2.6mmol/L) (0) no / (1) yes

smoking Actively smoking (or stopped <2 years ago) (0) no / (1) yes

atrialfib Atrial fibrillation/flutter (>1 documented episode)

(0) no / (1) yes

followimage_type Follow-up brain imaging

(1) None / (2) CT / (3) MRI / (4) CT and MRI

Hospital course / outcome

ich_sympt_hospital Symptomatic intracranial hemorrhage (0) no / (1) yes

ich_sympt_hospital_date Date of intracranial hemorrhage (dd.mm.yy)

Variable Name

Section Variable description Variable description / format

stroke_hospital Recurrent ischemic stroke in hospital (0) no / (1) yes

stroke_hospital_date Date of stroke (dd.mm.yy)

death_hospital Death in hospital (0) no / (1) yes 3-month follow-up form does not open if

cea_symptomatic Endarterectomy for symptomatic carotid stenosis

(0) no / (1) yes

Date of endarterectomy (dd.mm.yy)

cas_symptomatic Stenting for symptomatic carotid stenosis (0) no / (1) yes

Date of stenting (dd.mm.yy)

pfo_closure PFO closure (0) no / (1) yes

Date of PFO closure (dd.mm.yy)

discharge_destination Discharge destination (1) Home / (2) Rehabilitation hospital / (3) Other acute care hospital / (4) Nursing home, palliative care center, or other medical facility

discharge_date Date of hospital discharge (or death in hospital)

(dd.mm.yy) (hh:mm)

duration_hosptial Duration of hospital stay (dd:hh)

3-Month outcome

followup_date Date of follow-up (dd.mm.yy)

followup_mode Mode of follow-up (1) Clinical / (2) Telephone or other contact with patient / (3) Telephone or other contact with relative

mRS_90days mRS 3 months after stroke onset (0) 0 = No symptoms / (1) 1 = No significant disability despite symptoms / (2) 2 = Slight disability / (3) 3 = Moderate disability / (4) 4 = Moderately severe disability / (5) 5 = Severe disability / (6) 6 = Dead

Recurrent cerebrovascular events after discharge, ≤90 days of initial event (multiple events are possible)

stroke_followup Ischemic stroke including retinal stroke (0) no / (1) yes

stroke_followup_date Date of stroke (dd.mm.yy)

ich_followup Intracranial hemorrhage (0) no / (1) yes

ich_followup_date Date of intracranial hemorrhage

(dd.mm.yy)

death_followup Death (0) no / (1) yes

death_follwoup_date Date of death (dd.mm.yy)

3. Intracerebral hemorrhage

Variable Name

Section Variable description Variable description / format

Variable Name

Section Variable description Variable description / format

General information

id_site Site ID

birth_date Date of birth (dd.mm.yy)

id_hospital_case Hospital case ID (case number in hospital)

id_event Event ID

event_type Type of event (Criteria for new SSR entry Each hospital or emergency room admission for cerebrovascular event <7 days before admission, or occurring in hospital. If several events, select the most severe.

(1) Ischemic stroke / (2) Transient ischemic attack / (3) Intracerebral hemorrhage/ (4) Retinal infarct / (5) Amaurosis fugax / (6) Acute ischemic myelopathy / (7) Cerebral sinus vein thrombosis / (8) Non-traumatic subarachnoid hemorrhage

zip Zip code of legal residence (4 digit number)

non_swiss No Swiss residency (tick box)

arrival_date Date and time of arrival at hospital (dd.mm.yy) (hh:mm)

age Age (yyy.yyy)

sex Sex (1) Male / (2) Female

Prehospital phase and admission

Symptom onset

onset_known Time of symptom onset known (0) no / (1) yes / (3) wake up

onset_time Time of symptom onset or last proof of good health

(dd.mm.yy) (hh:mm)

wakeup_time Time of awakening (dd.mm.yy) (hh:mm)

referral Referral (1) Emergency service (144) / (2) General Practitioner / (3) Self referral / (4) Other Stroke Unit or Stroke Center / (5) Other hospital / (6) In-hospital stroke

referring_unitcenter Patient referred from:

transport Type of transport (1) Ambulance / (2) Helicopter / (3) Other (taxi, self, relatives, friends...)

Clinical assessment

NIH_admission NIH Stroke Scale on admission (0-41) continuous (xx)

GCS_admission GCS on admission (3-15) continuous (xx)

Brain imaging on admission

firstimage_type First brain imaging type (1) CT / (2) MRI / "If no internal brain imaging done:" (3) External CT / (4) External MRI

firstimage_result First brain imaging result (1) No acute lesion / (2) Ischemia / (3) Ischemia with hemorrhagic transformation / (4) Acute intracranial hemorrhage / (5) Other finding

Biometric data

bp_syst First systolic blood pressure in hospital (mmHg)

continuous (xxx)

Variable Name

Section Variable description Variable description / format

bp_diast First diastolic blood pressure in hospital (mmHg)

continuous (xxx)

height Height (cm) continuous (xxx)

weight Weight (Kg) continuous (xxx)

bmi BMI continuous (xx.x)

glucose Serum glucose (mMol/L) (first value after arrival) continuous (xx.x)

hospitalization Initial hospitalization

(1) Monitored stroke unit in-house / (2) Non-monitored stroke unit in-house / (3) Other intermediate or intensive care unit in-house / (4) General ward in-house / (5) Referral to other Stroke Unit or Stroke Center / (6) Referral to other hospital or care institution / (7) Outpatient management

other_unitcenter Patient referred to:

etiology_hemorrhage Etiology (1) Hypertension / (2) Anticoagulant / antithrombotic treatment / (3) Amyloid angiopathy / (4) Vascular lesion / (5) other determined etiology / (6) Unknown

Medical history

Past cerebrovascular events

stroke_pre Ischemic stroke or retinal infarction (0) no / (1) yes

tia_pre TIA or amaurosis fugax (0) no / (1) yes

ich_pre Intracranial hemorrhage (0) no / (1) yes

Cerebrovascular risk factors (known or newly diagnosed)

hypertension Hypertension (>140/90 mmHg repetitively) (0) no / (1) yes

diabetes Diabetes (without glucose intolerance) (0) no / (1) yes

hyperlipidemia Hyperlipidemia (treatment or LDL>2.6mmol/L) (0) no / (1) yes

smoking Actively smoking (or stopped <2 years ago) (0) no / (1) yes

atrialfib Atrial fibrillation/flutter (>1 documented episode)

(0) no / (1) yes

followimage_type Follow-up brain imaging

(1) None / (2) CT / (3) MRI / (4) CT and MRI

Hospital course / outcome

ich_sympt_hospital Symptomatic intracranial hemorrhage (0) no / (1) yes

ich_sympt_hospital_date Date of intracranial hemorrhage (dd.mm.yy)

stroke_hospital Recurrent ischemic stroke in hospital (0) no / (1) yes

stroke_hospital_date Date of stroke (dd.mm.yy)

death_hospital Death in hospital (0) no / (1) yes 3-month follow-up form does not open if

Date of PFO closure (dd.mm.yy)

decompression Decompressive craniectomy (0) no / (1) yes

Variable Name

Section Variable description Variable description / format

discharge_destination Discharge destination (1) Home / (2) Rehabilitation hospital / (3) Other acute care hospital / (4) Nursing home, palliative care center, or other medical facility

discharge_date Date of hospital discharge (or death in hospital)

(dd.mm.yy) (hh:mm)

duration_hosptial Duration of hospital stay (dd:hh)

3-Month outcome

followup_date Date of follow-up (dd.mm.yy)

followup_mode Mode of follow-up (1) Clinical / (2) Telephone or other contact with patient / (3) Telephone or other contact with relative

mRS_90days mRS 3 months after stroke onset (0) 0 = No symptoms / (1) 1 = No significant disability despite symptoms / (2) 2 = Slight disability / (3) 3 = Moderate disability / (4) 4 = Moderately severe disability / (5) 5 = Severe disability / (6) 6 = Dead

Recurrent cerebrovascular events after discharge, ≤90 days of initial event (multiple events are possible)

stroke_followup Ischemic stroke including retinal stroke (0) no / (1) yes

stroke_followup_date Date of stroke (dd.mm.yy)

ich_followup Intracranial hemorrhage (0) no / (1) yes

ich_followup_date Date of intracranial hemorrhage

(dd.mm.yy)

death_followup Death (0) no / (1) yes

death_follwoup_date Date of death (dd.mm.yy)

4. Retinal infarct

Variable Name

Section Variable description Variable description / format

General information

id_site Site ID

id_event Event ID

event_type Type of event (Criteria for new SSR entry Each hospital or emergency room admission for cerebrovascular event <7 days before admission, or occurring in hospital. If several events, select the most severe.

(1) Ischemic stroke / (2) Transient ischemic attack / (3) Intracerebral hemorrhage/ (4) Retinal infarct / (5) Amaurosis fugax / (6) Acute ischemic myelopathy / (7) Cerebral sinus vein thrombosis / (8) Non-traumatic subarachnoid hemorrhage

Clinical assessment

ocular Ocular (1) no / (2) right / (3) left / (4) bilateral

3-Month outcome

followup_date Date of follow-up (dd.mm.yy)

followup_mode Mode of follow-up (1) Clinical / (2) Telephone or other contact with patient / (3) Telephone or other contact with relative

mRS_90days mRS 3 months after stroke onset (0) 0 = No symptoms / (1) 1 = No significant disability despite symptoms / (2) 2 = Slight disability / (3) 3 = Moderate disability / (4) 4 = Moderately severe disability / (5) 5 = Severe disability / (6) 6 = Dead

Recurrent cerebrovascular events after discharge, ≤90 days of initial event (multiple events are possible)

stroke_followup Ischemic stroke including retinal stroke (0) no / (1) yes

stroke_followup_date Date of stroke (dd.mm.yy)

ich_followup Intracranial hemorrhage (0) no / (1) yes

ich_followup_date Date of intracranial hemorrhage

(dd.mm.yy)

death_followup Death (0) no / (1) yes

death_follwoup_date Date of death (dd.mm.yy)

5. Amaurosis fugax

Variable Name

Section Variable description Variable description / format

General information

id_site Site ID

id_event Event ID

event_type Type of event (Criteria for new SSR entry Each hospital or emergency room admission for cerebrovascular event <7 days before admission, or occurring in hospital. If several events, select the most severe.

(1) Ischemic stroke / (2) Transient ischemic attack / (3) Intracerebral hemorrhage/ (4) Retinal infarct / (5) Amaurosis fugax / (6) Acute ischemic myelopathy / (7) Cerebral sinus vein thrombosis / (8) Non-traumatic subarachnoid hemorrhage

Clinical assessment

ocular Ocular (1) no / (2) right / (3) left / (4) bilateral

3-Month outcome

followup_date Date of follow-up (dd.mm.yy)

Variable Name

Section Variable description Variable description / format

followup_mode Mode of follow-up (1) Clinical / (2) Telephone or other contact with patient / (3) Telephone or other contact with relative

mRS_90days mRS 3 months after stroke onset (0) 0 = No symptoms / (1) 1 = No significant disability despite symptoms / (2) 2 = Slight disability / (3) 3 = Moderate disability / (4) 4 = Moderately severe disability / (5) 5 = Severe disability / (6) 6 = Dead

Recurrent cerebrovascular events after discharge, ≤90 days of initial event (multiple events are possible)

stroke_followup Ischemic stroke including retinal stroke (0) no / (1) yes

stroke_followup_date Date of stroke (dd.mm.yy)

ich_followup Intracranial hemorrhage (0) no / (1) yes

ich_followup_date Date of intracranial hemorrhage

(dd.mm.yy)

death_followup Death (0) no / (1) yes

death_follwoup_date Date of death (dd.mm.yy)

6. Acute ischemic myelopathy

Variable Name

Section Variable description Variable description / format

General information

id_site Site ID

id_event Event ID

event_type Type of event (Criteria for new SSR entry Each hospital or emergency room admission for cerebrovascular event <7 days before admission, or occurring in hospital. If several events, select the most severe.

(1) Ischemic stroke / (2) Transient ischemic attack / (3) Intracerebral hemorrhage/ (4) Retinal infarct / (5) Amaurosis fugax / (6) Acute ischemic myelopathy / (7) Cerebral sinus vein thrombosis / (8) Non-traumatic subarachnoid hemorrhage

7. Cerebral sinus vein thrombosis

Variable Name

Section Variable description Variable description / format

General information

id_site Site ID

id_event Event ID

event_type Type of event (Criteria for new SSR entry Each hospital or emergency room admission for cerebrovascular event <7 days before admission, or occurring in hospital. If several events, select the most severe.

(1) Ischemic stroke / (2) Transient ischemic attack / (3) Intracerebral hemorrhage/ (4) Retinal infarct / (5) Amaurosis fugax / (6) Acute ischemic myelopathy / (7) Cerebral sinus vein thrombosis / (8) Non-traumatic subarachnoid hemorrhage

8. Non-traumatic subarachnoid hemorrhage

Variable Name

Section Variable description Variable description / format

General information

id_site Site ID

id_event Event ID

event_type Type of event (Criteria for new SSR entry Each hospital or emergency room admission for cerebrovascular event <7 days before admission, or occurring in hospital. If several events, select the most severe.

(1) Ischemic stroke / (2) Transient ischemic attack / (3) Intracerebral hemorrhage/ (4) Retinal infarct / (5) Amaurosis fugax / (6) Acute ischemic myelopathy / (7) Cerebral sinus vein thrombosis / (8) Non-traumatic subarachnoid hemorrhage