Transition in the Netherlands trough patients eyesANNELIES HOEKSTRA

Index

My own transition experience Transition in most university hospitals Experience from others Differences between child clinic and adult clinic

Me, myself and I

24 years old Clinical Neuropsychologist Board member of the JIA-association in the Netherlands

Polyarticular Crohn’s disease

My own experience

University hospital of Groningen Already seen my adult rheumatologist

Appointment with both rheumatologists Arthritis consultant

University Hospital of Groningen

Already see an adult rheumatologist as a child Multiple double appointments

Netherlands

One or more appointments with both rheumatologists Confidence of patient 16-18 years old Arthritis consultant

Quotes of other patients

“I’ve had two appointments with both rheumatologists and after this appointment I went to a special transition-nurse, who has contact with both rheumatologists.”

“There was one appointment with both doctors. If there were three of this appointments it would be better. One was nice, but it was not complete.”

“There should be a transition, but I’ve never had one. They just made an appointment at the adult clinic. I didn’t even like my adult doctor, so I went to another hospital.”

Differences between clinics

Child Clinic

Less rheumatologists More clinics at one location Children Time to talk about life Parents are responsible

Adult Clinic

More rheumatologists More seperated clinics Majority of old people Shorter appointments You are in charge

Conclusion

Transition gives confidence Do not skip it because of the lack of time Let patient and family adjust Focus on the differences between clinics

Questions?